At a recent social event, the conversation rolled on until it came around to that question ‘so how is your daughter going?’ I responded with a brief update; she’s communicating more through eye-contact, managing the car-seat and overall doing great. It’s a difficult question to answer sometimes, when you have a medically fragile child. Now, if I was sitting with […]
“Both light and shadow are the dance of Love. Love has no cause, it is the astrolabe of God’s secrets”. Rumi ‘Oh sh*t, I think our wedding anniversary was last week’ I blurt out as we leave yet another therapy session for Chiara. We’ve been married for five years. But both of us aren’t really keeping track though, our […]
To my two little lionesses To my two little peace warriors To my two little wise souls Thank you for gracing my life With so much beauty So much buoyant love & brightness Thank you for bringing so much possibility and wonderment to each and every single day I love you both fiercely I am so blessed that I get […]
(the font size keeps changing on me on this post, no idea how to set it all to one size…!!) The transition from 2015 into 2016… How was our 2015? amazing, frightening and extraordinary. This year was cruel as much as it was kind. We excelled in some areas and completely failed in others. We laughed until our bellies […]
Two thousand and fifteen What a crazy year you have been. Hospitals, ambulances, therapies and more practising patience seems to be our universal law. We give thanks for our beautiful family and friends Who span the globe to every single end The continued love, support and hope Makes us realise we’re not alone in our boat And when the seas […]
Can you believe we almost got accepted for Channel 9’s “Renno Rumble TV show in 2016”, by the same producers of “The Block”! Some kind soul had nominated our family, Channel 9 were seeking families with children of cerebral palsy/special needs to create a “family dream home”! They came to our home to take photo’s, interview us on camera and […]
Those who know me, know that I am often led by my intuition. Which can drive people close to me a little crazy. I trust my gut instincts a lot, we all have had those moments where we have made a decision and it just doesn’t feel right. That’s your intuition talking loud and clear. Doesn’t mean I always get it right though. Nonetheless I’m paying attention to it more than […]
Days like these are tough. We’ve gotten used to the RCH visits, but every now and then there’s a big one that knocks us all for six. Chiara fasting from 7am to get Botox treatment in her hamstrings and adductors and a plaster cast to help treat her relapsed clubfoot. Drop off Grace to kinder and on route to RCH. After the 200th+ […]
Thank you to Tessa for her blog post and podcast. You can view it here, and it will send you to iTunes for the links. I would also like to honour a beautiful little girl Eva, who through her short time on earth has left a huge imprint on the world of families with special needs children. And to her […]
Thank you to a very good friend Emma who produced this short-film about Chiara and her journey so far. It’s not easy trying to encapsulate all that comes with the special needs road, however Emma has captured the essence of it all, brilliantly! I get teary watching it, not only because of Chiara but how blessed I am to have […]
