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Botox treatment for CP

  Days like these are tough. We’ve gotten used to the RCH visits, but every now and then there’s a big one that knocks us all for six. Chiara fasting from 7am to get Botox treatment in her hamstrings and adductors and a plaster cast to help treat her relapsed clubfoot. Drop off Grace to kinder and on route to RCH. After the 200th+ […]

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Chiara’s Short-Film

Thank you to a very good friend Emma who produced this short-film about Chiara and her journey so far. It’s not easy trying to encapsulate all that comes with the special needs road, however Emma has captured the essence of it all, brilliantly! I get teary watching it, not only because of Chiara but how blessed I am to have […]

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RCH visit

The RCH drill. Wake 5am (skip meditation & yoga b/c I’m keen to prep everything before poppets wake) get breakfast ready, pack Chiara’s hospital bag, get paper work ready, check appointment times, pack Grace’s kinder bag, get clothes ready, put load of washing on, hang the new batch on the line, and fold the other lot. Maur is getting the cold-pressed juice […]

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Episode 03: The call is recorded – what an honour

Tessa’s Blog Post : Episode 03: The call is recorded – what an honour. It’s was great to connect with Tessa from The One In A Million Baby,  I have such deep reverence for Tessa and Eva and what they are doing for the community at large. Although Tessa’s daughter Eva gained her angel wings, she is still very much a part of this journey on so many levels. As I was speaking and sharing my own story, I was quietly amazed at her ability to hold the space for myself (and other mama’s like me) to share our journey’s, heart breaks and all. Like so many Mama’s like me, we get it. Our stories may be different, but our love and heart-break so similar when it comes to our greatest littlest creations –  our children. To me, Tessa and Eva are a true testament to the profound gifts that are possible even after the most heart-breaking of times. And this is what inspires me to never give up, come what may…

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The bless in the mess

Pretty happy to see some fine motor skill action!  Whenever we notice any new micro-milestones we quietly notify one another so we don’t alarm Chiara and break her concentration. It’s sometimes hard for us to contain our excitement and often I burst with it – then the next thing her bottom lip drops and she’s crying! She is so so […]

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