This is visual diary of our beautiful daughter’s journey through what started as simple treatment for her Talipes (clubfoot), to an unfolding of a more serious diagnosis, that is thought to impede her ability to ever walk, talk or live a long life. Chiara has been given many labels, since her MRI at 5 months of age found she had Bilateral Perisylvian Polymicrogyria, Microcephely, Global Development Delay and Spastic Quadriparetic Cerebral Palsy
All the labels come down to one thing – brain injury. The medical team attribute the aforementioned diagnosis to a possible stroke Chiara had in-utero.
My intention for sharing our journey, is in the hope we can help Chiara reach her highest possible potential. Chiara has a very intense rehabilitation schedule which includes home therapies, physiotherapist, speech pathologist, osteopathy, occupational therapist, myotherapist, naturopathy, hydrotherapy, massage therapy, acupuncture therapy, anat baniel therapy, IAHP therapy, feldenkrais therapy, tomatis therapy, kinesiology therapy which we access through Fundraising and Better Start.
On top of this there is also ongoing medical and equipment costs.Chiara may need to access some of these therapies and equipment for the rest of her life, unless a miracle unfolds!
Since Chiara was only 10 days old, she has been admitted to The Royal Children’s Hospital many times for concerns around her ability to breathe, as well as other physiological issues. Chiara has also attended over 200 specialist appointments to hospital over the past two years and continues to attend various departments for treatment.
As parents we are doing whatever it takes to provide our daughter with the very best opportunity so she can thrive and survive in this lifetime.
My passion for Natural Therapies, Health and Wellbeing and my love of Yoga Teaching are weaved throughout this blog, to bring other perspectives to this new ‘special needs’ world.
So welcome lets be realistic and plan for a miracle!
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All photo’s and text copyright © Natalie Roberts Mazzeo