Christmas Meanderings

Can you believe we almost got accepted for Channel 9’s “Renno Rumble TV show in 2016”, by the same producers of “The Block”! Some kind soul had nominated our family, Channel 9 were seeking families with children of cerebral palsy/special needs to create a “family dream home”! They came to our home to take photo’s, interview us on camera and […]

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Botox treatment for CP

  Days like these are tough. We’ve gotten used to the RCH visits, but every now and then there’s a big one that knocks us all for six. Chiara fasting from 7am to get Botox treatment in her hamstrings and adductors and a plaster cast to help treat her relapsed clubfoot. Drop off Grace to kinder and on route to RCH. After the 200th+ […]

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The bless in the mess

Pretty happy to see some fine motor skill action!  Whenever we notice any new micro-milestones we quietly notify one another so we don’t alarm Chiara and break her concentration. It’s sometimes hard for us to contain our excitement and often I burst with it – then the next thing her bottom lip drops and she’s crying! She is so so […]

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