We have been busy in the world of Chiara. The IAHP program is ticking along, we are gathering all the information for the Interim Report which is exciting. Â We have also reignited other brain development therapies over the past few weeks, such as NAET sessions, which are wonderfully explained in Kristen Morrisons book ‘Naturally Better Kids’; and Feldenkrais sessions. Interestingly, […]
4.30am: Chiara wakes – bring her in bed to re-settle lots of forehead kisses 5.00am: keep pressing the snooze button on the alarm 5.30am: so tempted to press the snooze button again – but get up and meditate/yoga sesh 6.00am: pack for hospital visit (breakfast, snacks, lunch, bottles, clothes, nappies, referral forms, A.F.O’s, boots n’ bar etc). Pack Grace’s kinder […]
Back at the hospital today and apart from the car ride – all went smoothly! New mould for the AFO (ankle.foot.orthosis), then downstairs to see Prue & Dr. Johnson for the new cast. Glad we got to see Michael before he dashed into theatre for an op, he’s amazing! Chiara will have the cast on for the next 3 weeks, […]
The IAHP Program is going well, yay! We are at our max of 40 masks a day (oxygen enrichment program) and have seen direct results already. Her overall tone has softened, this is especially noticeable given Chiara has Quadriparetic (4 limb affected) Cerebral Palsy. Often her little body is overcome with extreme hyertonia, causing severe stiffness and rigidity. Now her body feels a lot more […]
Another early morning adventure to RCH for little Chiara, a quick pit-stop to drop Grace at kinder beforehand however she decided to have a mini protest just after I signed her in… so the next thing I knew we were all back in the car and off to the hospital 😉 We met with Dr. Johnson who put another perfect cast on Chiara, she […]
There is a little effervescent person whom I owe so much gratitude to, the most adoring little soul who has been by our side every step of the way, since Chiara’s whirlwind-style entrance to the world. GRACE, beautiful Grace I cannot begin to thank you for your worldly wisdom and bright spark that has brought so much comfort to this […]
Back at RCH this morning for a new cast.. our apt was at 10am but we didn’t get called through for an hour or so. During the wait time, you get to watch all the hustle and bustle of this busy clinic. Doctors come and go, orthopaedic surgeons walk by.. children laughing, some crying… I’ve spent many hours since Chiara […]
It’s midnight… We have already spent many hours trying to settle a very unsettled little poppet. Earlier on, I had woken to her muffled intense cries to find her in the cot with her hand stuck in between her teeth..  Grace wakes up and runs down to Chiara’s bedroom and starts crying seeing Chiara so distressed… “no Chiara, don’t bite […]
Back home from one of those massive RCH visits, where a standard routine check turned into a long day of medial procedures, tests and tears. When the doctor told us we have to start from scratch with Chiara’s clubfoot treatment, my heart skipped a beat… and kept on skipping after listening to his comments whilst he examined Chiara. He was […]
We have started to use S.P.I.O which stands for Stabalizing Pressure Input Orthosis. It’s the little blue suit that Chiara is wearing in the photos. It helps with stability and proprioceptive issues by providing deep pressure – which aids somatic input specific to balance and movement control. In Chiara’s case, we are focusing on her core/midline to improve stability and […]
