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divine chaos

Talk about turning up the heat – what chaos! There’s hasn’t been much down time, time to just ‘be’ a normal family doing normal family things. Instead life is full of physical therapy, a lot of appointments, a lot of planning, a lot of packing and unpacking the car, a lot of special needs equipment, a lot of extra planning […]

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sleep salvation

Sleep. Finally, after two long years of chronically broken sleep we have a found solid rest again. It wasn’t the normal lack of sleep that most parents experience (from the newborn to toddler stage) of teething, wet nappies, colic etc, we know this kind, as Grace also took a while to sleep through. However, this time around, it was different, very different. […]

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more tests. more light.

Today we had another hearing test for Chiara at www.taralye.vic.edu.au. Taralye is the oral language centre for deaf children, and due to Chiara’s brain-injury and concerns around developing speech, we need to monitor via audiology and otology testing. This is our second visit, I recall taking Chiara there when she was about 7 months old, I didn’t feel concerned about her hearing back then, […]

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balance

Yep – this picture sum’s up the past two years! Funambulism! the art of walking along a thin wire or rope. Not surprising that it’s commonly associated with the circus, which could be an analogy for our parenting gig this time around 😉 Balance: an even distribution of weight enabling someone or something to remain upright and steady. We’ve been walking a […]

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friday physio home visit

Wow, what an experience to have physio sessions at home. No crazy intense car-rides which means a stress free morning for us. Our physiotherapy sessions with Di are funded through Better Start, so even though the home visits are a lot more expensive it provides so much ease. Chiara is able to get the full benefits of the therapy without […]

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