1 step forward 2 steps back
There has been a lot happening in the world of Chiara. We are seeing some pretty amazing results with the NUTRITION program. All of Chiara’s meals are home made, with the correct ratio of protein, carb’s and fats. Yep, we measure everything she eats and upload it into a daily/weekly/monthly/yearly spreadsheet. It’s crazily time consuming, but we’re slowly getting the hang of it. Each meal (breakfast, lunch and dinner) needs to have at least 3 vegetables – one green leafy, another green vegetable and one other colour like a carrot or red capsicum. It also needs to contain whole grains (amaranth, millet, quinoa or brown rice) and have a cold-pressed oil (walnut, olive, coconut, sesame, etc.) added on top, as well as an animal or plant protein. It’s a fine balance, but all this effort goes towards optimal growth and development. So we are going nuts with green leafy’s and organic fruit and veg in this house, the fridge is bursting with goodness – loving it!!
The OXYGEN ENRICHMENT program is going well. We are up to 30 masks a day and have noticed a huge difference, especially in her overall tone from the Cerebral Palsy. Although we are still experiencing the intense finger biting episodes where her jaw clamps down on her tiny finger and bends it into a shape that is far from normal, so we hope these will stop asap..
We also had to cast her foot again at the recent RCH visit, which puts her PHYSICAL program behind schedule 😦 Hopefully we won’t have too many casts in the coming weeks, it’s hard to manage Chiara in a cast, let alone without a cast.. as you can imagine, we are getting desperate to see some movement in her mobility.. patience Natalie… surrender surrender… I have to remind myself every now and then 😉
So we’ll be frequenting the RCH for the next month or so and continuing on with as much of the IAHP program has possible given the clubfoot treatment. Some happy snaps photo’s of Nanna & Chiara. Thank you mum for constantly reminding me about the power of HOPE, especially during those times when I feel mine is dwindling x
Categories: Cerebral Palsy